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Les anciennes News

Retrouvez sur notre site tous les événements de l'année qui ont marqué notre association, et la préparation des prochains rendez-vous.

02/02/2012 Rare Disease Day (February, 29th 2012)

15/01/2011 Rugby match for Moebius and Welcome to our new Godfather

13/01/2011 Happy New Year

24/12/2009 MERRY CHRISTMAS AND HAPPY NEW YEAR

06/01/2009 Happy new year

23/12/2008 National strategies and Action for Rare Diseases in Europe (Conference on November, 18th 2008)

14/12/2008 Walk against rare disorders 2008

01/09/2008 All our condoleances

05/07/2008 General Assembly 2008 of the French support group for Moebius syndrome in Brittany

16/12/2007 French walk againts rare disorders 2007

23/08/2007 Link to moebius-france.org on the following website sante-az.aufeminin.com/

10/08/2007 Moebius International Foundation - Conference in Italy in May 2007

11/06/2007 General Assembly in May 2007 (Lathus, Haute Vienne)

01/01/2007 French walk against rare diseases 2006

31/07/2006 7th Moebius Syndrome Foundation conference in San Francisco: photographs

31/07/2006 7th Moebius Syndrome Foundation conference in San Francisco (USA)

11/07/2006 Management of patients suffering from Moebius syndrome with speech therapy

26/06/2006 Information meeting of members of Alliance Maladies Rares

13/03/2006 Meeting "Handicap and psychoanalysis" on 1rst April 2006

12/02/2006 National plan for rare diseases: following the meeting on 02/02/2006

06/02/2006 National plan for rare diseases 2005-2008: situation after one year and views

11/12/2005 4th Gala for the Spanish Moebius syndrome fondation at Roses (Spain)

12/02/2005 National plan for rare diseases (following the previous part on 06/02/06)

30/03/2004 Le Sourire de Déborah

10/03/2004 ENGLISH VERSION AT LAST!

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